The Health Studies Australian National Data Asset (HeSANDA) program [PDF, 243 KB] seeks to create a distributed data asset from the data outputs of health research projects (explicitly but not exclusively from the NHMRC Clinical Trials and Cohort Studies - CTCS - program). This asset is designed to support further research, meta-analysis, and clinical guideline development.
To realise a health studies data commons, the program will have three streams. The first stream, the data development stream, is to capture initial consensus around the nature of the national data asset. This might include looking at data standards and quality, expectations around the nature and accessibility of data "outputs" of health research projects.
The next two streams of the program are around developing:
- a coherent distributed infrastructure
- culture and policy to address some of the broader enablers and obstacles of the technology and infrastructure initiative.
The data development stream provides an opportunity for interested parties to help define and co-design a national data asset. The ARDC is calling for expressions of interest (EoI) [PDF, 287 KB] to participate in the first stage of the data development stream This is only one of three streams in the program and participation in this stream is not a prerequisite for participation in future streams.
Please complete the EoI form below if you are interested in helping to develop a national data asset.
Expression of Interest
The ARDC is seeking EoIs for the initial data development phase from:
- participants - are interested individuals who want to register as members of the project and are contactable (when appropriate). Participation is on a voluntary basis.
- contributors / editors - are experts (individuals) with experience in documenting data standards and requirements analysis. A modest stipend (a flat $7K) will be paid to defray time and expenses during the six month project phase and to secure allocation of time.
- data development project management organisations - are organisations with an ABN or equivalent who can contract with the ARDC to design and manage this data development phase as a project. The organisation should have a national profile and national trust; their expertise in data development and neutral participation should confer confidence in the process.
The EoI is open on 29 November 2019 and closes 8:00pm AEDT Tuesday 28 January 2020. Submit your EoI by reviewing the documentation [PDF, 287 KB] and then completing the form below.
If you require further information regarding the process, please contact us.