Wed, 18 Sep 2019
  • Webinar: (ARDC-PHRN) Is low sun exposure during early life a risk factor for type 1 diabetes?

    Wed, 18 Sep 2019  12:00 pm - 1:00 pm


    Over the past decade, UVR exposure has become of increasing interest in relation to the development of type 1 diabetes because of its immunomodulatory actions mediated through production of vitamin D, cis-urocanic acid, nitric oxide and stimulation of other pathways. Exploration of possible benefits of UVR exposure requires its accurate measurement.  Kate will discuss how linked data was used to validate the use of NASA satellite data of erythemal UVR dose as a proxy for UVR exposure, as measured by serum 25 hydroxyvitamin D levels, during pregnancy, an identified critical life stage of exposure for autoimmune diseases.

    She will also share the results from a recent nested case-control study investigating the association between UVR during gestation and the first year of life and type 1 diabetes risk. The study utilised individually linked data from the Midwives’ Notification System, the Western Australian Children’s Diabetes Database and the Western Australian Death Registrations which were then merged with NASA satellite data. This population-based study is the first study to examine date and location-specific ambient UVR levels throughout pregnancy and infancy and T1D risk.


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Thu, 19 Sep 2019
  • Geospatial Capabilities CoP - First Meeting

    Thu, 19 Sep 2019  11:00 am - 12:00 pm

    ARDC Meeting Room 1 is inviting you to a scheduled Zoom meeting. 

    Time: Sep 19, 2019 11:00 AM Canberra, Melbourne, Sydney 
    Join from a PC, Mac, iPad, iPhone or Android device: 

        Please click this URL to start or join. 
        Or, go to and enter meeting ID: 334 661 400  
    Join from a dial-in phone: 

        Dial: +61 3 99059666 (+61 3 9905 ZOOM) or +61 2 8015 2088
        Toll-free dial: 1800 893 423 (US/Canada only)
        Meeting ID: 334 661 400 
        International numbers available: 

    Join from a Video capable room system(H.323/SIP): 

        61262227588 (From within Monash only) 
        7588@ (H323) or (SIP) 
        or or

        Meeting ID: 334 661 400 

    Your use of ZOOM is subject to the University IT Acceptable Use Policies. 
    For information about how the university handles your personal information, please refer to the HR Privacy Collection Statement(Staff) or Student Privacy Collection Statement.

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Wed, 25 Sep 2019
  • Webinar: (ARDC-PHRN) Towards an integrated national data platform for stroke

    Wed, 25 Sep 2019  12:00 pm - 1:00 pm


    Dr Kilkenny will be speaking about the innovative national stroke data linkage program. She is driving this program that links data from the Registry with administrative data across the continuum of stroke care. This will enable an integrated national data platform for stroke.

    Dr Kilkenny is a Senior Research fellow/NHMRC Research Fellow within the Stroke & Ageing Research Group (Monash University).   She is an emerging leader in stroke and collaborates with other leaders in the field of stroke research. Her expertise is particularly recognised in her expertise for analysing large and complex datasets.


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Wed, 2 Oct 2019
  • Webinar: Enabling FAIR Data in the Earth and Space Sciences

    Wed, 2 Oct 2019  10:00 am - 11:00 am


    The Enabling FAIR Data project, convened by the American Geophysical Union (AGU) and funded by Arnold Ventures, brought together hundreds of partners from across the geoscience community to make geoscience data more findable, accessible, interoperable and reusable on a large scale. The aims of the project were ambitious: to address the challenges of finding and accessing scientific data; to accelerate scientific discovery and enhance the integrity, transparency, and reproducibility of this data. The 18-month project has been a trailblazer and there is much that the broader research community can learn and adapt. In the recent commentary in the journal Nature, the Enabling FAIR Data Steering Committee calls on the entire scientific community across all disciplines to sign onto the Enabling FAIR data commitment statement and they lay out a set of changes necessary to shift research culture more broadly.

    As a proud project partner, and signatory to the commitment statement,  ARDC is pleased to present this webinar with the following guest speakers:

    • Shelley Stall - Senior Director, Data Leadership, AGU
    • Lesley Wyborn - Adjunct Fellow, NCI, ANU
    • Jens Klump - Team Leader, Geoscience Analytics, CSIRO

    The Enabling FAIR Data project worked over 18 months to adopt a set of principles to ensure data, software and samples connected to scholarly publications align with the FAIR data principles. More than 100 repositories, communities, societies, institutions, infrastructures, individuals and publishers in the Earth, space and environmental sciences have already signed onto the Enabling FAIR data commitment statement for handling data based on these principles.

    Who should attend?
    Anyone with an interest in making data FAIR including researchers of all disciplines, research support staff (librarians and technical staff), research data curators and managers.


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  • Webinar: ARDC-PHRN Use of linked administrative data to evaluate continuity of primary care

    Wed, 2 Oct 2019  12:00 pm - 1:00 pm


    Presenter: A/Prof Rachael Moorin, Curtin University
    This webinar will showcase work undertaken as part of a NHMRC funded project grant that used administrative and self-reported data from the 45 and Up Study and WA whole-of-population linked data to evaluate the influence of patterns of primary care contact on potentially preventable hospitalisations.
    The webinar will include four related pieces of work beginning with introducing the concept of regularity of contact as the measure of longitudinal continuity and our work developing a modified regularity index that corrects for the correlation with frequency of GP contact. This will be followed by two examples of work using this metric to (i) evaluate its impact on diabetes-related hospitalisations and (ii) ‘high use’ hospitalisation and readmissions. The webinar will then present work undertaken recently by a recently completed PhD student in developing a new measure of continuity that incorporates a time-limited protective effect provided by contact with a GP. The webinar will conclude with an overview of the next steps for this project including planned use of our linked WA whole-of-population data that includes both a de-identified provider and practice identifier.


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Wed, 9 Oct 2019
  • Tentative; Sensitive Data; Health and Medical (Meeting 5)

    Wed, 9 Oct 2019  12:00 pm - 1:00 pm
    RF to add Zoom

    (Currently in draft)
    We are pleased to announce Meeting 5 of the Sensitive Data Community of Practice (CofP) which will provide an opportunity for interested persons to discuss challenges and strategies for managing Health and Medical data. The idea for a Sensitive Data Community of Practice came out of the 'Sensitive data: how do you do yours?' eResearch Australasia Birds of a Feather session (2018), where a large number of delegates indicated an interest in continuing a discussion around sensitive data. See the Sensitive Data community document.
    Meeting 5 - Health and Medical Data
    Following Meeting 3, discussion of community needs, and Meeting 4, Indigenous data, this time we focus on Health and Medical Data. We have two speakers and then time for discussion and questions.

    ... seeking alternate - Qld Genomics Health Alliance
    (Speaker to be advised; invited) GenV, Murdoch Childrens Research Institute.

    Who would benefit from attending
    For those in the Research, Government or Medical community who work with sensitive (and particularly health and medical) data, and wish to better manage, store, analyse and collaborate on that data safely.
    For more information, contact: nichola.burton -at-, frankie.stevens -at-

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September 2019

Mon Tue Wed Thu Fri Sat Sun
  • Australian Vocabulary Special Interest Group (AVSIG). Video meeting
  • Webinar: ARDC & EMBL-ABR: Multi-omics statistical integration with mixOmics
  • Webinar: FAIMS Mobile: Customisable Electronic Field Notebooks
  • Vic Tas eResearch Data Management Informal; Unimelb
  • Tech Talk in Sept; HPC Platforms and Skills
  • Webinar: Data linkage to the Australia and New Zealand Dialysis and Transplant Registry (ANZDATA)
  • Australian Research Software Management, Curation and Citation Interest Group
  • Webinar: (ARDC-PHRN) Is low sun exposure during early life a risk factor for type 1 diabetes?
  • Geospatial Capabilities CoP - First Meeting
  • Webinar: (ARDC-PHRN) Towards an integrated national data platform for stroke